In terms of managing (the pain), I have tried various contraceptive pills but cannot take them anymore due to a long standing headache condition. When I had periods, they always lasted a minimum of 10 days, I would soak through super tampons within 20 minutes, soak through the thickest pads and pass blood clots constantly. Extreme bloating where I appear to be six months pregnant. Painful bowel movements and bleeding/passing clots during bowel movements. Nausea so bad I could barely eat and lost over 20kgs, GI problems such as constipation and diarrhea. Every step sends shooting pain through my pelvis. Lower back pain, pain spreading into my thighs and hips makes it difficult to walk. After intercourse, the pain can leave me bed bound for days as my pelvis flares. Arousal is painful, having an orgasm is painful, as is penetration, etc. Painful sex worsened over the years it got so bad I was scared of having sex. There was constant pelvic pain and extreme and sudden hot stabbing pain that took the wind out of me and made me double over or collapse onto the floor. Painful periods, painful ovulation, and month-long pain. SK: What are your most common endometriosis symptoms? How do you manage them?Īlex: Before (my) excision (surgery), and even after, my most common symptom has always been pain. She also battles adenomyosis, fibromyalgia and chronic migraine. She was diagnosed in 2019 after 14 years of suffering. Ashley Kalena, Age 34, Washington, D.C., is a 34-year-old YouTube manager for National Geographic living in Washington D.C. In pain for three years, she was diagnosed in 2012. Hannah Purdon, Age 27, Hobart,Tasmania, Australia, Purdon is a 27-year old-psychic living in Hobart, Tasmania. She also battles adenomyosis, fibromyalgia and crohn’s disease. After suffering for 16 years, she was diagnosed in 2018. She also battles fibromyalgia, ME/chronic fatigue syndrome and idiopathic neutropenia.Ĭlaudia Wright, Age 28, Perth, Western Australia, Wright is a 28 year old writer living in Perth, Western Australia. After 18 years of symptoms, she was diagnosed with endometriosis in 2017. Alexandra Cartlidge, Age 33, Solihull, England, is a 33-year-old tattoo artist living in Solihull, England.
They talked with us about the pros and cons of having a “visible” disability, people’s reactions to having mobility assistance and being bold endo advocates fighting for better treatment options, awareness and a cure through sharing their very personal stories and photos. We spoke with four inspiring women who have chosen to use canes or other mobility assistance devices to help them manage their endo symptoms and increase their ability to get from point a to b more comfortably. Online, they have found the strength to use a visible aid for an invisible illness that is not only immensely helpful but empowering to them and the endo community.
This movement has paved the way for endo sufferers to take it upon themselves to invest in a cane or other mobility device to help them walk on the days where their symptoms are dire. But social media, specifically Instagram, has changed the game for many endo patients who have dedicated their accounts to raising awareness and finding and providing support and resources beyond what their doctors have prescribed. While these people may seemingly look fine on the outside, those with chronic illnesses have become masterful at hiding their suffering out of necessity to maintain jobs, relationships and social lives.Ī deeper issue of its invisibility is the inability to identify and connect with others who have the same illness. A common complaint is that the pain is so intense, it is difficult to get out of bed or to walk down the hallway. Depending on its severity, people living with endo treat their pain with painkillers, physical therapy, home remedies and natural healing.
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